HELPING YOUR CHILD COPE WITH EPILEPSY: IS YOUR CHILD DISABLED OR HANDICAPPED? “CAN / LET MY CHILD GO OUT AND PLAY?”
Posted: under Epilepsy.
Of course! You not only can, but must let him go out and play, go on trips, sleep at a friend’s house. “But suppose he has another seizure?” That’s a risk you have to take. A careful analysis of risks is an important part of raising any child. It is a particularly important part of raising a child with the uncertainties of epilepsy. It is the crucial ingredient in avoiding overprotection. His ability to run around and his intelligence are the same as before the seizures. Most children with epilepsy are neither retarded or learning-disabled. For most such children, the only impairment is that, from time to time, there may be a seizure. For 99.99 percent of the time your child is the same as always.”BUT ISN’T HE DISABLED?” The answer is NO! He can still run and play, go to school, sleep over at a friend’s house. There is virtually nothing that a child who has had a few seizures cannot do. “Can he ride a bike?” Sure. The chances of having a seizure while riding his bike are very small; he is only minimally at greater risk than before his seizures. “Can she swim?” Absolutely, but her swimming must be supervised, just as every child’s swimming must be supervised. “Isn’t there a higher risk that she could drown or have a seizure in the water?” Yes, but only a slightly higher risk, since she has had only occasional seizures and may never have another one. Technically, your child may have a disability. He or she may fit the government definition that enables a person to obtain special services if the seizures interfere with education or work. But having a disability is very different from being disabled.A handicap is often superimposed by society, parents, friends, or schools. A person can also impose it on himself.We find that the best approach to a child who has had several seizures, who has now been labeled “epileptic,” is for you to gain a realistic acceptance of your child’s limitations (if any) and to focus on his potential. This requires a conscious effort to put aside your anxiety and concern about all of the things that could happen. This is not an easy thing to do. It requires acceptance of the fact that there are risks inherent in rearing any child and that most children with epilepsy, especially those whose epilepsy is controlled, face only slightly greater risks than other children.Children who have severe, or intractable, epilepsy and those who have additional impairments such as mental retardation, cerebral palsy, or learning disabilities also require realistic acceptance. It is equally important that these children, too, be encouraged to reach their full potential, and that additional handicaps not be superimposed.*187\208\8*